Experiences, perceptions, & preferences of parents of autistic children regarding the level of parent-collaboration facilitated by Speech-Language Pathologists

Date of Submission

Spring 2024

Document Type

Closed Research Project

Degree Name

Master of Science in Speech-Language Pathology

Department

Speech-Language Pathology

First Advisor

Lourdes Martinez-Nieto, PhD

Abstract

Parent collaboration is a central component of family-centered, culturally responsive, and neurodiversity-affirming Speech-Language Pathology practice. This study examined the experiences, perceptions, and preferences of parents of children with autism regarding the level of collaboration provided by speech-language pathologists (SLPs), as well as parents' awareness of neurodiversity-affirming care. Thirty parents of children diagnosed with autism spectrum disorder participated in a multidimensional survey consisting of Likert-scale and open-ended questions. Results indicated that many parents reported limited involvement in therapy sessions and inconsistent access to information and education about their child’s therapy goals and strategies. Most parents expressed a preference for increased involvement and more information from SLPs. Approximately one-third of parents reported awareness of neurodiversity-affirming care, with many learning about the concept from their child’s SLP. Qualitative findings identified themes of parent avoidance and perceived lack of SLP engagement. Findings highlight the importance of dynamic, individualized parent collaboration approaches and underscore the role of SLPs in supporting family-centered and neurodiversity-affirming care practices

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